I also still have all the paperwork that was already in the study before we started bringing boxes in from the garage to sort. Thankfully, there are only about 7 boxes or so. There is a chance that I will actually be able to get through the rest of the paperwork by the end of October. That would be huge. But, I have other things happening, so I won't be disappointed, if I don't finish it all up by then. I know I will be done with the paperwork and have the study completely cleared out by Thanksgiving.
In the meantime, we will be putting the social security card found earlier and the birth certificates to use and start the process of getting guardianship of the girls.
Apparently after a child with a developmental disability has finished with high school, their parents are no longer in charge of their medical, financial, or other such life-changing decisions. They're treated like any other adult. They have the right to refuse medical treatment. They have the right to spend their money as they see fit, so if they want to do nothing but buy cookies and nothing else, they have that right.
So this summer when Hopper broke her leg, if she had not still been in school, we could not have signed for her to have surgery. If she had not consented to it, the doctors would refuse to treat until they had the court's okay to treat. The delay that getting a court order could take could mean the difference between life and death. And we get that. We will never allow either of the girls to go through something so horrible.
However, it still somehow feels wrong that a parent has to get guardianship to be able to make the same decisions for their disabled children that they've made since they brought them home from the hospital as babies. It's a bit of a slap in the face. It feels as though your parenthood is somehow being siphoned away, and you will now just be called, 'guardian'.
Thankfully, it's just a legal term.
We will always be the girls' mommy and daddy.
And nobody can ever take that away, no matter how hard they might try.
So for the next couple of months while we go through getting permanent guardianship of our own children, the stress level is going to go up. It will involve attorneys and court visits and home visits and . . .
So let the stress begin.